This post is titled " Bringing Home the Sherwood Twins" because this is now getting to the final days/weeks we will be spending here in the NICU at Cincinnati Children's Hospital. I've been told this is where the roller coaster of emotions really begins, and I am already starting to see why! We have been told we would be leaving in a few short weeks, then from a few nurses (expressing concern) said that we should really expect to be going home around Labor Day, AND THEN this week during rounds, the doctor and nurses have all said that Monday (five days from today) could be THE DAY. See what I mean about roller coaster? And that's just been the beginning. Yesterday we had to send Trenna for her MRI that would scan her brain (because of the low grade brain bleed she had when she was born) and her pelvis and abdomen (to check and see if the tumor was completely removed). Fast forward to today, I was partially crushed when the doctor came in and said that they found some areas on the front ventricles where oxygen didn't get to, causing a little fluid to get in. That can possibly increase her chances of challenges developmentally such as cerebral palsy. Right now, where she is so young, it is too early to tell what it would mean, so all we can do now is watch over her because their brains can change so much. Sorry to not really have any for sure details besides seeing something on her head, but we will just read up and study as much as we can and listen to what specialists think and go from there. But as disappointing as that is, we were given some good news about her pelvic/abdomen area. There is no more tumor! Thank you Jesus, we truly needed that good news. Our sweet little Trenna has been through so much in her short life already, I couldn't imagine making her go through another surgery to remove anything else from her bottom
"The light shines in the darkness, and the darkness has not overcome it." John 1:5
With all the ups and downs we can see the light at the end of the tunnel. We understand that we aren't out of the clear and we will still have to overcome some heavy obstacles involving our girls developments, but as the days turn to weeks, the weeks turn to months and months turn to years our faith in the Lord grows stronger and stronger and we know that when we give it all to Him, He will be with us watching over these amazing miracles that we are so blessed to call our daughters!
Thank you to a dear friend and former co-worker for posting this on my facebook page today, it was encouraging to read this when I was down
I am so happy for you guys! I heard the great news! I am so sad that I won't be able to say goodbye, but thankful for getting to meet such a great family. Shannon and Trevor your strength and courage throughout this whole journey has amazed me. Trenna and Ellie are so lucky to have you both as parents. Thank you for letting me take care of your beautiful girls. I am so happy that I got to meet your sweet family. Please, please, keep in touch. I wish I could officially discharge you guys, but know I will be thinking of you all day. I will miss you guys! Congrats again :)
ReplyDeleteThanks so much Julie! It was so bittersweet to know we were leaving Monday because we wouldn't get to say good bye to you!!! The girls, Trevor and I had such a great time getting to know you and under the circumstances, you helped to make the stay so much better! We will def stay in touch! I have to keep up and sweet the sweet videos of your Little man! :) Thank you so much for making this time a happy and positive time for us and taking such great care of our girls! I know I'll never learn to swaddle the girls up as well as you did! Ellie will just have to settle for a semi jelly bean burrito! :)
ReplyDeleteHa ha ha! Ellie busted out of any bundle I did. She liked being a free woman ;) Good luck today! Enjoy every second with your beautiful babies. I am thinking of you guys all day today. I hope you settle in for a stress free day (as much as possible) and have a great night at home as a family of four with your fur babies. Wednesday is going to be sad knowing I won't be able to see you, but to know you are safe and sound at home is even better.
ReplyDeleteHave fun Sherwood's! Your journey has just begun :)